Real Life

Part of what I like about this blog is that I get to post about all of the fun things that we do, and ideas to help other parents. It’s like taking a break from “real life”. Not that homeschooling isn’t real life, but during that time I am for the most part able to set other things aside and focus solely on that.

I wanted to take a moment to post about some things going on in our “real life”. If you happen to be a person of faith these would be prayer requests.
In Sep. 09, my daughter Hailey was diagnosed with a condition called Chiari Malformation in addition to this finding a Syrinx was found on her spine. The Neurologist we saw did not know much about this condition so we sought a second opinion. On Monday we are going to see a Neurosurgeon for yet another opinion. We are hoping that he will be able to discuss the treatment available for her and what restrictions she will have. I am glad we are going, but I have to admit that it is all a bit scary for me. I want what’s best for my daughter and sometimes that means making hard decisions. (Brain Surgery) I think that’s what scares me the most. Every day I look at her and thank God for such a beautiful blessing, but until I get some answers I am also often overcome with worry.

We go Tuesday to the Commission for Children with Special Medical Needs to see an ENT and to have Christopher’s ears checked again. Last time we went he was still showing hearing loss in his right ear. When he was two he received 8 months of speech therapy. There were still concerns about his speech the last time we went but he did not qualify for state funded speech therapy. I have worked with him and he has improved so much but there are still concerns. I’m hoping to receive more options this go around. We put him on our personal insurance so I’m hoping they will offer something.

That about sums it up for now. Thank you in advance for your prayers.